JESY Nelson has revealed a brand new video showing her twins holding hands as they laid back in their double buggy.
The 34-year-old welcomed twin daughters Ocean Jade and Story Monroe with ex , 27, in May 2025.
Jesy Nelson has revealed an adorable video of her twin daughters holding handsCredit: Prime Video
The little girls lay wrapped under a blanket as they wrapped fingersCredit: Instagram/@jesynelson
The Little Mix songstress gave birth to the girls prematurely at 31 weeksCredit: jesynelson/Instagram
Little Ocean Jade and Story Monroe then fell asleepCredit: Instagram/@jesynelson
The at 31 weeks and is no longer with the music producer, who
Last month, bravely revealed the tots have since been diagnosed with Spinal Muscular Atrophy Type 1 (SMA1).
The former star and mum-of-two has seen her Amazon on her parenthood journey hit number one spot while continuing her fight for life-saving SMA tests.
During the documentary – and on her social media – Jesy has kept her followers up-to-date with her daughters’ battle.
Recently, she shared a snap of one of her daughters after .
Now, with the device firmly re-attached, Jesy uploaded an adorable video showing the little girls relaxing together.
They donned pastel coloured baby grows and snuggled up under a pink and white star print blanket.
As they gently wriggled around they appeared to hold hands in a super sweet moment.
She then uploaded an image showing them still locking fingers after falling fast asleep.
Jesy put the Ben E King track Stand By Me as a background song as she uploaded it to her Stories.
Recently, over her fears over the struggles her twins will face.
revealed she “burst into tears” after receiving the special feeding chairs her daughters will need as they live with Type 1 (SMA1).
She admitted the arrival of the equipment brought home the reality of their condition, describing it as an emotional milestone in their ongoing journey.
Spinal Muscular Atrophy: Signs and symptoms
Spinal muscular atrophy is a disease which takes away a person’s strength and it causes problems by disrupting the motor nerve cells in the spinal cord.
This causes an individual to lose the ability to walk, eat and breathe.
There are four types of SMA – which are based on age.
- Type 1 is diagnosed within the first six months of life and is usually fatal.
- Type 2 is diagnosed after six months of age.
- Type 3 is diagnosed after 18 months of age and may require the individual to use a wheelchair.
- Type 4 is the rarest form of SMA and usually only surfaces in adulthood.
What are the symptoms?
The symptoms of SMA will depend on which type of condition you have.
But the following are the most common symptoms:
• Floppy or weak arms and legs
• Movement problems – such as difficulty sitting up, crawling or walking
• Twitching or shaking muscles
• Bone and joint problems – such as an unusually curved spine
• Swallowing problems
• Breathing difficulties
However, SMA does not affect a person’s intelligence and it does not cause learning disabilities.
How common is it?
The majority of the time a child can only be born with the condition if both of their parents have a faulty gene which causes SMA.
Usually, the parent would not have the condition themselves – they would only act as a carrier.
Statistics show around 1 in every 40 to 60 people is a carrier of the gene which can cause SMA.
If two parents carry the faulty gene there is a 1 in 4 (25 per cent) chance their child will get spinal muscular atrophy.
It affects around 1 in 11,000 babies.
She posted a photo of one of the special feeding chairs to her story.
It showed a pink cushioned chair with straps, a headrest, a tray, a foot stand, handlebars and wheels.
She wrote: “So the girls need special feeding chairs that came yesterday and I couldn’t help but burst into tears yesterday when I saw them.
“It just made me feel so sad as it’s just another reminder of another obstacle we have to tackle. Do any other SMA mummies feel this way?”
Spinal Muscular Atrophy (SMA) is a genetic condition that weakens the muscles by damaging motor nerve cells in the spinal cord.
It leads to progressive muscle wasting, and if untreated, the life expectancy of a baby with SMA Type 1 is two years.
Jesy and Zion have been told it is unlikely the girls will ever walk, and may face serious breathing and swallowing difficulties.
Only around 50 children in the UK are born with the condition a year.
In her first TV interview since , Jesy gave fans an update on her girls.
She tearfully told This Morning hosts Cat Deeley and Ben Shephard: “I just want to be their mum. I don’t want to be a nurse. It’s hard”.
Jesy continued: “They’ve had their treatment, thank God. A one-off infusion. That puts the gene back in their body that they don’t have. It stops the muscles still working from dying. Any that have gone you can’t regain them back.
“Now it’s down to constant physio. We’ve been told they’ll probably never walk or regain their neck strength. They’ll probably be in wheelchairs.”
Jesy revealed how the twins were going to Great Ormond Street Hospital twice a week.
“They’re still smiling, they’re still happy and have each other. That’s the main thing I’m so grateful for because they could be doing this by themselves,” she continued. “All I can do is try my best to be there for them and give them positive energy, keep doing physio.
“My whole life has completely changed. If you came to my house it looks like a hospital. My whole hallway is filled with medical stuff. It’s crazy how you can go from one extreme to the next.”
Since revealing her twins’ diagnosis, Jesy has called on the to expand the standard heel prick test to screen for SMA1.
Jesy has split with baby daddy Zion Foster and unfollowed him on social mediaCredit: Shutterstock
She has fought to raise awareness of SMA, the condition suffered by her twinsCredit: ITV
She recently shared a snap of her daughter after she had pulled out a feeding tubeCredit: Instagram
Eze Chidiebere Paul
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