JESY Nelson has shared her daughter’s milestone moment, as the tot sat upright amid her heartbreaking health battle.
The former star’s twin daughters are , which left , 35, “heartbroken”.
Jesy Nelson today shared a heartwarming milestone moment as her twins battle SMA Credit: Instagram
The singer revealed her daughter can sit up on her own Credit: Instagram
Since revealing the news about her babies earlier this year, the with how Ocean and Story are doing.
In her latest post, Jesy shared a huge milestone, which saw one of her daughters sitting upright in her wheelchair.
Type 1 SMA means those diagnosed have trouble doing this, so Jesy was thrilled when one of her daughters did it on her own, also with no medical tube.
The proud mum shared the adorable moment on .
Both of Jesy’s twin daughter have the muscle-wasting disease Credit: Instagram/Jesynelson
The proud mum shared the milestone moment on Instagram Credit: Instagram
“She looks like such a big girl with no tube on her face and sitting upright in her chair,” Jesy penned.
The latest update comes as the singer is getting ready to release her latest Prime documentary, Life Changing, which follows her life as a mum for the first time.
Last week, a first look at the new series dropped and saw the and declared that it would leave her “heartbroken for the rest of my life”.
Brave Jesy allowed cameras into her life for a second time, following her smash- hit doc, Life After Little Mix.
Jesy is getting ready to release her new heartbreaking Amazon doc Credit: instagram/@jesynelson
The twins with their dad Zion Foster Credit: Instagram
The original premise of her new series was to show her settling into life as a mum of twins.
What she didn’t know at the time was that her eight-week-old girls — Ocean and Story — had a rare condition (Spinal Muscular Atrophy Type 1) that could prevent them from ever being able to walk.
In the raw clip that dropped last Thursday, Jesy was seen standing as a doctor delivers the life-changing diagnosis, telling her: “The genetic testing came back positive for Spinal Muscular Atrophy.”
It prompts devastated Jesy to break down in tears as she contemplated what this means for her young family.
She said: “I can’t believe this is happening. It’s the most severe muscle disease a baby can have.
“I don’t know how we are going to do this. I feel like I’m going to feel heartbroken for the rest of my life.”
Earlier this year, Jesy launched a petition for more health checks for babies, reaching more than 150,000 signatures.
In a letter addressed to Jesy and Giles Lomax, the chief executive of the charity SMA UK, Health Secretary confirmed that screenings will be rolled out earlier than planned.
They will now begin as part of in-screening evaluations (ISE) from October 2026 instead of January 2027.
It is believed that more than 400,000 newborns will benefit from the move.
But 163,000 newborns will remain untested so they can act as a control group to compare outcomes.
This has been branded by experts as “unethical” and means that an estimated 11 babies a year will still be diagnosed too late.
Eze Chidiebere Paul
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