Genetic testing provides patients and doctors a wealth of new information. But the medical world is making rapid advances in understanding what the data means, and that’s whipsawing diagnoses and treatment.,

Hillary Savoie wanted clear answers. Instead, the genetic testing results for her 4-year-old daughter, Esmé, sent her reeling. “I’m pale. The bags under my eyes are purple,” she wrote in her blog started when Esmé was a baby. “My lips are drawn tight in a thin line.” Ever since the little girl came into the world in 2011, limp, blue, and…

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