Table of Contents
- Introduction
- Experience with Sickle Cell
- Advice on Genotype Testing
- Living with Sickle Cell Crisis
- Watch the Interview
Renowned Nigerian artist Adekunle Gold has disclosed that he continues to face challenges related to sickle cell crisis.
This revelation came during a video of his recent interview that was shared on social media.
Reflecting on his journey, the 38-year-old artist stated, “I still experience crises.”
Expressing the discomfort caused by the condition, Adekunle Gold revealed that he has been on lifelong medication since he was five years old.
He emphasized the significance of genotype testing, saying: “My goal is to raise more awareness about it because many people are unaware, and the relevant organizations are not doing enough to address it.”
“Sickle cell is most recognized in my home country, Nigeria. It occurs when an SS genotype matches another SS. Therefore, understanding your genotype is crucial to avoid having more children with sickle cell.”
“Unfortunately, my parents both had sickle cell, and they brought me into the world. The first time I learned about sickle cell was when I frequently fell ill with joint pain. When we discuss crises, it involves pain in the joints, legs, and sometimes the stomach. It’s truly overwhelming.”
“I first realized I had it one night when I fell ill, and my father was not home. My mother carried me on her back, and we walked miles to the hospital. I can’t recall my exact age, maybe around 5 or 7. That was when the doctor informed me about it, and they prescribed folic acid and B complex for the rest of my life. That has been my reality for a long time, even until now.”
“I still experience crises occasionally, but they are not as severe as they were during my childhood, likely because I have learned to manage my health better. I am thankful to God for the resources that allow me to do so.”
What is sickle cell crisis?
Sickle cell crisis refers to episodes of severe pain that occur when sickle-shaped red blood cells block blood flow to the body's organs, leading to intense discomfort and complications.
How can genotype testing help prevent sickle cell disease?
Genotype testing helps individuals understand their genetic makeup, which can prevent the pairing of two carriers (SS) from having children with sickle cell disease, thereby reducing the incidence of the condition.
